Da quando Lucia si è ammalata non abbiamo mai dovuto preoccuparci di quanto avremmo speso per tutte le cure che ha dovuto sostenere, anche per quelle avute, per ben due anni, fuori regione. Non abbiamo mai speso nulla per le risonanze e le tac, nè tantomeno per il piccolo catetere venoso sottocute che le ha permesso to do all infusion therapy that respects its veins, "toy" which costs about € 6oo, and that has enabled a completely normal life, like taking a shower and go in the pool and the sea in periods should not undergo therapies. The same chemotherapy would cost exorbitant, even thousands of euro, unless there was a National Health System. And thanks to the ASL we were able to take Lucy home last period of his life, supported in every way. The local health authority has made us to have all the necessary tools: a bed with the banks and the "goat", ie the support to help lift up in bed, the chair with the headrest, hyper, the oximeter to monitor oxygen saturation, the swivel chair to enable it to enter the bath without having to make the effort to climb over the edge of the bath, the oxygen tank, all the material for dressings, everything which was used for infusion therapy and parenteral nutrition (a sac for nutrition costs several hundred Euros, and if it uses a day), even diapers. But every day we have been supported mainly by nurses very professional and very human, which emotionally involved with us the whole story of our daughter, who never left us alone and has always responded with care and affection to our needs, to point personally solicit a visit from the neurosurgeon, at home, for better medicare Lucia.
There could be the objection that since both physicians, Mark and I probably have more data to do that in other situations. Not so. If the doctor is a medical care of the sick, who really wants to follow his patients and not only deface the card, then things work very well, he coordinates and oversees the entire team, requires examination, treatment and decide the advice of specialists and nurses are running just as if they were in a hospital ward: take drugs, they put on and take off the drip, make the dressing. In addition, for the first 40 days free of charge, have come every day carers that help and advise parents in the management of the bedridden patient (such as move, how to change it and wash it, and so on). After 40 days, depending on the economic possibilities of the family, the service is paid a fee or go into the City management, but the cooperative is the same, and then the operators are the same. Even the assistants have always done their utmost to Lucia, have always been a kind and gentle with her really big, not to embarrass her and always very keen to help when he needed a hand in most.
All this attention, this dedication, professionalism, have been released this money pubblici, non abbiamo avuto bisogno di rivolgerci ad associazioni private, per rispondere a bisogni importanti dei cittadini. Si tratta di una assistenza praticamente ospedaliera, ma a domicilio, che per i pazienti può significare un comfort maggiore che in ospedale (ad esempio poter mangiare le cose che si desiderano agli orari che si preferiscono), e significa avere sempre il conforto dei famigliari sempre vicini. Per l'azienda sanitaria locale il costo di tutto è sicuramente inferiore a quello di un ricovero ospedaliero.
Ora, se qui a Bologna è possibile avere una assistenza così qualificata senza dover spendere un euro, perchè in tante altre regioni non è possibile?
Se ci fosse una preponderanza della sanità privata, as happens in many other Italian regions, including North America, the costs to patients would be very high, everything is against them, many would not heal.
The American model, linked to private insurance, is an unfair model, which never covers all patients, in fact, lets just hand just when they need it most.
We make sure that the NHS remains public!
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